A life in the shadow - Erythropoietic Protoporphyria (EPP) from sane line com Watch Video
Preview(s): Play Video: (Note: The default playback of the video is HD VERSION. If your browser is buffering the video slowly, please play the REGULAR MP4 VERSION or Open The Video below for better experience. Thank you!)
Your browser does not support playing the video.Please download the video!
Description: Continuing and persistent burning pain, isolation and a lack of understanding from peers has a long term impact on patients diagnosed with erythropoietic protoporphyria (EPP). For Lyndal, 24, the disease has led to severe depression.nnEPP can be defined as absolute light intolerance. Exposure of Lyndal's skin to sunlight results in severe burning pain, swelling and scarring caused by a phototoxic reaction. Throughout her life, Lyndal has endured countless painful reactions to sunlight.nnWith no