Living with A-T, a rare progressive degenerative disease -- Rylie's Story from kamakawiwo somewhere over the rainbow Watch Video

⏲ Duration: 5 min 37 sec
✓ Published: 31-May-2019

Description:
When their daughter was just two years old, Erica and Tim Rahall received heartbreaking news: their vivacious daughter Rylie was diagnosed with ataxia-telangiectasia (A-T), a super rare progressive degenerative disease. Rylie is just one of about 500 confirmed cases of A-T in the United States, and about 1000 worldwide. Despite the wretchedness of the disease, Rylie, now 9 years old, is full of joy and remains optimistic about the future. nnTo fight for Rylie and a cure for A-T, please visit: nh